We're now 5 days into 2009 and I'm still not happy. Although I'm making an effort. I organised a picnic with friends and family yesterday and we sat in the sun in the park at the beach and had a great time. I've invited friends around tonight for a champagne, so I'm not just sitting around doing nothing, although I AM avoiding people as much as I can.
Over christmas the implant became very uncomfortable again, so today, when the implant centre opened after christmas, I went over to see if they could tweak the last remaining electrodes so I can hear comfortably as an aid to lipreading. The result was dismal. One electrode had to be switched off so I'm now down to five, and the others had to be turned right down as they were uncomfortable. The impedance test showed major changes, but Ellen thinks that could be because I'm not wearing the implant as much as I should.
To give you a recap...
In march 2008, not even one year ago, I was reimplanted as my old first implant I had failed. On doing the autopsy, they found a tear in the silicon, so there was fluid ingression, which meant the electrodes couldn't work.
The new implant showed great promise... Take a look at the map just one week post switch on...
|From The Ambling Rambler|
And you can read about it in the blog I did back in April 2008
I got to that stage, then slowly slowly electrodes had to be switched off and I heard less and less. An x-ray showed that the electrodes had been pulled out of the cochlea. Today? This is what my mapped looked like...
As you can see, the two maps are vastly different, with the first one giving me a very broad specrum of sound with a great dynamic range, to virtually no dynamic range and only a small proportion of sound. With this latest map, I only hear a fraction of what I heard with my first implant, and a fraction of what I first heard with my implant at switch on in 2008. I recognise no sound. Voice is totally muffled. It's now been 18 months since I heard properly.
I am going to be reimplanted. My fate is at the hands of ACC or Accident Compensation Corporation. I have just heard today they are required to get 2 more pieces of information: the advice of an independent CI / ORL surgeon and the legal advisor. They've already had my application for 2 months. I had hoped that they would give me an answer before Christmas. I should have realised that Government Departments only work at one speed - S L O W.
It's enough to drive a girl to chocolate, champagne and icecream. All three I bought on the way home from my mapping session today. If that doesn't cheer me up, then there is no hope!!!